Director
Marlene Koning
Hello. My name is Marlene Koning and together with my husband, Adrian, we have three young adult sons. We all live in western Canada.
In early 2001 at the age of 43 my husband was diagnosed with Fabry disease as a result of total kidney failure.
It has been a huge and at times difficult and challenging learning curve to live with someone with a life threatening disease and to watch the impact on our family.
Based on my personal experience, I have a passion to help others who are in a similar situation overcome the stress and strain that this disease has on families and help them to function in a positive manner. My hope is that all Fabry families have access to psychological and social support because Fabry is more than a severe physical disease. email
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