http://www.fabryintnetwork.com/home/navigatie1/newsletter7/eurordis http://www.fabryintnetwork.com/home/navigatie1/newsletter7/eurordis/eurordis-2008-photo-contest-deadline-extended You now have until March 31st, 2008 to send your most beautiful, unusual, or artistic photos on the theme of "Living with a rare disease". Share your lives with us! And we’ll share them with the community to raise awareness of the pain and joys, the courage and the ordinary simple moments of living with a rare disease. Read more > http://www.fabryintnetwork.com/home/navigatie1/newsletter7/eurordis/eurordis-2008-photo-contest-deadline-extended Thu, 31 Jan 2008 08:17:51 -0600 http://www.fabryintnetwork.com/home/navigatie1/newsletter7/eurordis/29-february-2008-first-european-rare-disease-day A day for rare diseases? Yes, it is happening! 29 February 2008 will be the first celebration of the European Rare Disease Day: A Rare Day for Very Special People. The organisation of this awareness Day is coordinated by Eurordis at the European level and by National Alliances at the national level. Many events will take place throughout Europe. The Rare Disease Day will happen every year from 2008 onward. Read more > http://www.fabryintnetwork.com/home/navigatie1/newsletter7/eurordis/29-february-2008-first-european-rare-disease-day Thu, 31 Jan 2008 08:16:35 -0600